How to cope with brain cancer patients

The outcome for brain cancer patients depends on the kind of tumor they have. The patient and family often experience anxiety and a variety of emotions as they face the unknown. The more knowledge you arm yourself with, the better you will be able to cope with a friend or family member having a brain tumor.

Instructions

• 1

  Educate yourself. Do as much research as you can on brain tumors, especially the type your friend or family member has. Ask questions about the tumor and treatment. Get a second (or third) opinion on treatment options.

• 2

  Help with physical needs. Patients may need help for only major tasks--such as driving, running errands or grocery shopping--or also for day-to-day activities such as getting dressed, baths, preparing meals or caring for pets. Some patients may be bedridden, and you will need to be able to change bedding and possibly deal with a catheter, medications and other medical needs. As a caregiver, you may have to roll the patient over numerous times in a day to lessen risks of bed sores. You may need to help them to the bathroom.
  At some point you may need to decide if an additional caregiver, such as an at-home nurse, is needed. You may choose hospice services, where care can be given in the patient's home, a hospital, a nursing home or a private hospice facility. Hospice is intended for patients who have a prognosis of six months, at most, to live.

• 3

  Form a support system. Additional family, friends, a spiritual community and support groups are good starting points for building a foundation of support for both the patient and the family. According to braintumor.org, "The National Brain Tumor Society maintains a comprehensive list of brain tumor support groups for patients and their families."

• 4

  Communicate. Keep the lines of communication open among patient, doctor, family and any caregivers.

• 5

  Help with emotional needs and support. The patient may experience physical symptoms such as fatigue, nervousness and impaired sleep or appetite, as well as emotional reactions such as fear, shock, depression, anger, guilt, mood swings or crying, according to braintumor.org. These are normal reactions to stress. Sometimes just holding the patient's hand can be calming. Respect his feelings and listen to what he has to say. Many patients respond positively to small gifts, compliments and many "I Love Yous." Often, just being there is a comfort. The patient may lash out at you during an emotional outburst. Remain calm and understanding, and don't make judgments; it can be a relief to the patient to simply cry. Listen and let them.