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Is Stevens-Johnson Syndrome Contagious?

Stevens-Johnson syndrome (SJS) is a group of symptoms that result when a person has an adverse reaction to a medication (see Resources). People who have SJS or a related condition called toxic epidermal necrolysis (TENS) often look disfigured, with raw, oozing skin, which may make onlookers think they are contagious. SJS is not contagious, although at least one of its symptoms can be.

  1. Immune System

    • Stevens-Johnson is a severe allergic reaction, meaning that the immune system reacts negatively in response to a substance or drug that has been taken. A person's immune system can potentially react to almost any kind of medication.

    Non-Contagious Symptoms

    • Skin reactions are most prevalent with SJS, including burning, peeling, blistering and a red rash. A fever and symptoms similar to the flu are common. None of these signs of SJS is contagious.

    Conjunctivitis

    • Conjunctivitis, or pink eye, is one of the symptoms of Stevens-Johnson syndrome. Though the syndrome is not contagious, it is possible to spread pink eye from one person to another, if this symptom is present. Frequent hand washing can reduce the risk of contracting conjunctivitis from someone suffering from SJS.

    Treatment

    • Pain medications, antibiotics and hydration fluids through an IV are used to treat SJS, which can be life-threatening if left untreated. Though SJS patients are not contagious, visits with friends may be limited to lower the risk of secondary infections.

    Support

    • Support from family and friends is important to those affected by SJS. SJS can be devastating to one's health and potentially fatal, if infections cannot be controlled. Knowing that SJS is not contagious can help build support from people who have wanted to help, but were afraid of catching the disease.

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