How to Cope With Early Onset Alzheimer's in a Spouse

Less than 500,000 Americans are diagnosed with early-onset Alzheimer's each year, but for these patients and their families, it is a devastating disease with tremendous impact on the entire family. Scientists are unsure of the exact cause of this rare form of dementia that occurs in people younger than 65, but they believe it's genetic. For the spouse of the patient, it can be a particularly difficult situation to handle. Read on to learn how to cope with early onset Alzheimer's in a spouse.

Instructions

• 1

  Ask as many questions as you need to, and gather all the information you can. There is no cure for Alzheimer's disease; there is only coping. Education about the process your spouse is experiencing is critical to help you deal with your spouse's diagnosis.

• 2

  Inquire if your spouse is eligible for Social Security disability. He probably will have to stop working at a much younger age than anticipated, and the loss of income can be serious.

• 3

  Talk honestly to your older children about their parent's diagnosis. Many early onset patients still have children at home. Answer their questions and get them connected with your spouse's doctors. Help them deal with their grief, and get everyone involved in making the best of the situation.

• 4

  Accept the loss of intimacy with your spouse. As the disease progresses, your marriage will no longer be a partnership, but become more of a parent-child relationship as you assume the role of caregiver. This is difficult to face. If you are feeling unusually depressed or anxious, don't hesitate to get professional help. Your spouse's doctor can refer you to a therapist to help you deal with all the changes.

• 5

  Find a support group, either in person or online. Talking to another person experiencing early onset Alzheimer's in a spouse can be incredibly helpful. You can learn coping mechanisms from people who know what you're going through and who completely understand your frustration. There is no need for you to do this alone.