How to Start a Fibromyalgia Support Group

According to the National Fibromyalgia Association, Fibromyaglia is a common and complex chronic pain disorder with physical, mental and social implications. Fibromyalgia symptoms include chronic pain, sleep disturbances and fatigue. Those with severe symptoms often have difficulty with daily activities. The Fibromyalgia Network encourages local support groups, stating that members can share encouragement,understanding, friendly advice, and education. Providing a group means patients can share common problems without being misunderstood. They will know they are not alone.

Things You'll Need

• Meeting Place and Time
• Publicity
• Facilitators
• Topics and Guidelines
• Materials

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Instructions

• 1

  Find a place and time to meet. Many community centers, hospitals, senior centers, schools or churches have rooms available for no cost. You must inquire about the facility (charges, rules of use etc.) and determine the day of month and time frame you will be needing. Allow for growth in membership. Plan ahead!

• 2

  Publicize your group. Local newspapers may offer free listings for community events. The Arthritis Foundation may also be willing to promote your group. Ask about stipulations, or gather suggestions from them. Your rheumatology or physician's office provides another place for promoting group activities.

• 3

  Select facilitators.
  Due to the nature of this illness, plan to have backup leaders available. Be prepared to rotate leadership if needed. Members should be recruited to assist facilitators with duties, including setting rooms up, cleanup and directing people to the meeting. Meeting and greeting new members adds a personal touch.

• 4

  Set up rules and topics. Members can vote on and suggest a set of rules. Be prepared for people from all walks of life. It is also vital to state that no medical advice will be handed out from the group. Topics can be presented by guest speakers. Many speakers will be willing to provide free services, but again make sure no medical advice is given out and nothing is being sold. Do not violate rules of the facility. In the absence of a specific presentation, open discussions or spontaneous topics can be presented.

• 5

  Find materials. Free brochures can often be obtained. Check with fibromyalgia and arthritis organizations for starters. Members might also like to start a book lending library, or to share magazines. A simple tracking system can help you check materials in and out of your group. Be prepared for the possibility that things may disappear however and materials may not be returned. Guest speakers are a good source of information. Ask them to bring handouts.