How to Find a Genetic Counselor

If you realize that diabetes or heart disease or some other genetic disorder runs in your family, it is only natural to try to determine how you might be affected by it. Individuals who fear inheriting a genetic disorder or susceptibility can meet with a genetic counselor. Genetic counselors have expertise in disorders or conditions, how often and which ways they are transmitted through generations, and the options of patients in dealing with these predispositions. Be sure that any genetic counselor you consult has been certified by the American Board of Genetic Counseling.

Instructions

• 1

  Determine precisely what kind of information you wish to obtain. Genetic counselors specialize in very particular fields, such as prenatal care, pediatric care, adult genetics, genetic research, and advocacy on behalf of individuals with genetic predispositions. By being as specific as possible, you can more readily find the precise counselor who fits your needs. Some clinics, such as pediatric centers, have a genetic counselor on staff.

• 2

  Discuss your needs with a family physician, who might recommend a genetic counselor or a local clinic or agency that employs one regularly. You can also search the lists of counselors provided by the National Society of Genetic Counselors and the American Board of Genetic Counseling. Licensed genetic counselors will be divided into location, area of specialization, and name. Both the Society and the Board will provide contact information for particular counselors.

• 3

  Contact the genetic counselor you select by email or phone. Explain your needs to a secretary or assistant, who will screen your case. Sometimes, it turns out that a genetic counselor does not in fact specialize in your type of case or has limited knowledge about it. If so, the counselor should suggest another counselor who will be better able to meet your needs.

• 4

  If your case is a good fit for the counselor's expertise, schedule an in-person meeting. Remember that the process of consultation is a partnership and is most advantageous when you can bring accurate and up-to-date information to any meetings.