How to Manage Albinism

Over the years, albinism has gotten more attention through Hollywood movies such as "Powder," "The Matrix" and "The DaVinci Code." This has upset many of those who have the condition, since the movies don't accurately portray it, and, in most cases, insult people who really have to live with it. Albinism is, in fact, a group of genetic conditions that cause a lack of pigment. It can affect only the eyes, which is known as ocular albinism, or both the eyes and the skin, which is known as oculocutaneous albinism. Here are some basics on how to manage albinism.

Instructions

• 1

  Wear sunglasses. This is a must for anyone who has ocular albinism, where eyes can appear anywhere from blue to slate gray, or reddish-pink for those with less pigmentation. Light sensitivity is a big concern for people who have ocular albinism.

• 2

  Apply sunscreen when leaving the house. This is a must for anyone with oculocutaneous albinism. The lack of pigment causes the skin to easily burn, which can turn deadly as there is no protection against harmful UV rays.

• 3

  Wear full body protection when at all possible. As with sunscreen, it is important to protect the skin when outdoors. Even if you are wearing sunscreen, you should also protect yourself by wearing full shirts and pants and even large hats.

• 4

  Test for Hermansky-Pudlak Syndrome (HPS) as early as you notice albinism. HPS is a rare type of albinism that causes a bleeding tendency and lung disease.

• 5

  Allow someone with albinism to do everything that everyone else does, including sports and school.