How to Prevent Muscular Dystrophy

Because muscular dystrophy is a genetic disorder, there is no way to prevent the disease. There are many genetic tests available to determine whether or not a person is likely to have a child with muscular dystrophy. These tests help people with a family history of the disease make decisions about family planning.

Instructions

    • 1

      Talk with your doctor or OB/Gyn about yours and your husband's medical history. Discuss whether genetic testing is a good idea for you before trying to start a family.

    • 2

      Get recommendations from your doctor about genetic testing facilities and doctors who specialize in gene disorders. It's very important to work with a genetic specialist along with your regular doctor to get the most accurate diagnosis.

    • 3

      Ask for all the tests available for determining your risk of passing muscular dystrophy on to a child. Currently tests are not available for all types of muscular dystrophy, but scientists have many of the forms of muscular dystrophy covered by genetic testing.

    • 4

      Discuss prenatal screening for muscular dystrophy if you have already started a family or have a child with the disease. Preborn screening allows early treatment plans and time to prepare for a child with muscular dystrophy.

    • 5

      Use newborn screening to have your child tested for muscular dystrophy. Most newborns have a battery of screening tests to rule out certain disorders and provide treatment when necessary. Ask your neonatal doctor if muscular dystrophy screening is right for your child.

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