What are the support groups that exist for hemophilia?
National Hemophilia Foundation (NHF)
The NHF is the leading organization dedicated to advocating for and supporting people with bleeding disorders. It offers a variety of resources and services, including:
* A network of local chapters and affiliates
* Educational programs and workshops
* Support groups for people with bleeding disorders and their families
* Advocacy efforts to improve access to care and treatment
* Research funding
Hemophilia Federation of America (HFA)
The HFA is another national organization that provides support and resources for people with bleeding disorders. It offers a variety of programs and services, including:
* A network of local chapters and affiliates
* Educational programs and workshops
* Support groups for people with bleeding disorders and their families
* Advocacy efforts to improve access to care and treatment
* Research funding
World Federation of Hemophilia (WFH)
The WFH is an international organization that represents the interests of people with bleeding disorders around the world. It works to promote awareness of bleeding disorders, improve access to care and treatment, and support research. The WFH also provides a variety of resources and services, including:
* A network of national member organizations
* Educational programs and workshops
* Support groups for people with bleeding disorders and their families
* Advocacy efforts to improve access to care and treatment
* Research funding
In addition to these national and international organizations, there are also a number of local support groups for people with hemophilia. These groups provide a place for people with bleeding disorders to connect with others who understand what they are going through. They can also offer support and guidance to people who are newly diagnosed with hemophilia.
To find a local support group, you can contact the NHF, HFA, or WFH. You can also search online for "hemophilia support groups."