How to Discuss Fibromyalgia With a Spouse

Fibromyalgia is a complex, chronic condition characterized by widespread pain, multiple tender points on the body, stiffness in muscles and joints, interrupted sleep and ongoing fatigue. Fibromyalgia affects people physically, mentally and socially. In addition to pain and fatigue, fibromyalgia sufferers can experience debilitating psychological distress (See Reference 1). The causes of fibromyalgia have not been definitively determined; not all health care professionals are fully educated about the condition; and fibromyalgia patients may "look healthy." All of these features make it difficult for those with fibromyalgia to explain their illness to others, including their spouse or partner (See Reference 2).

Instructions

• 1

  Enlist your doctor's help. Whether your diagnosis is new (or worsening), or you have a new partner, just explaining what fibromyalgia is and how it affects your life can be a challenging task. Your doctor or another health care professional can help explain the intricacies of fibromyalgia, and answer your spouse's questions. Receiving this information from a knowledgeable and objective third party will help increase your spouse's comprehension of your condition.

• 2

  Use online materials to further educate your spouse. The National Fibromyalgia Association provides materials, including an overview for the newly diagnosed patient. The Center for Pain Management also provides good, clear information on how fibromyalgia can affect your life.

• 3

  Make your spouse part of your treatment plan. Once your spouse has been educated on your diagnosis, he or she will feel more useful and constructive when helping you address your symptoms. For example, a regular, moderate exercise routine (the National Fibromyalgia Association suggests 20 minutes, three days a week) is something you can do with your spouse (See Reference 1).

• 4

  Find a support group. Even the most sympathetic spouse will not be able to provide you with all of the support you need. Let your spouse know that you have another venue for discussion and support. The National Fibromyalgia Association provides a support group directory. You can also contact the Fibromyalgia and Fatigue Center near you for more resources.