How to Care for a Loved One with Huntington's Disease

Huntington's disease is a rare, genetic disorder that causes brain degeneration. The condition leads to rapid, jerky, involuntary movements of the head and limbs, mental confusion, loss of coordination and personality changes. The disease is also known as "Huntington's chorea." "Chorea," the Greek word for "dance," refers to the twitching, spasmodic movements associated with the disease.

Things You'll Need

• Large wall calendar
• Large wall clock
• Labels
• Small basket for personal items

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Instructions

Establish a Calm, Consistent Daily Routine

• 1

  Keep your loved one oriented by establishing a routine and doing the same things at the same time each day. A large wall calendar and wall clock will help keep track of the day and time.

• 2

  Put personal belongings such as wallet, glasses and keys in the same place consistently to remind her where they are. A small basket on a night table or near the door is handy.

• 3

  Use labels and signs on household objects to trigger her recognition of everyday things.

• 4

  Be sure to include exercise in your care routine. Research demonstrates that exercise helps patients with Huntington's disease. Depending on his strength and the progression of the disease, go for walks or do simple arm and leg lifts in a chair. Gentle stretching helps, too.

• 5

  Speak clearly and in short sentences. Give your loved one time to think and respond.

• 6

  Remind her to take small sips and small bites if eating and swallowing are difficult. A bendable straw may make drinking easier.

• 7

  Remind your loved one to take a sip of liquid between each small bite of food. Add sauces, gravies or applesauce to solid food to minimize coughing or choking.

• 8

  Help your loved one sit up straight while eating, and place a pillow in back of her head to keep the head from tilting back during meals.

• 9

  Lessen the risk of falls and injury due to balance problems. Remove area rugs, install grab bars in bathrooms, clear rooms of sharp or breakable objects and make sure your loved one wears sturdy, comfortable shoes.